Columnist Joe MacDonald's son Caeleb may need mobility assistance to get around an art museum, but that won't stop him from enjoying the day.

MacDonald is reminded about her son's hardships with hemophilia and has a glimpse at the adult he is becoming.

Travel planning has changed in recent years for columnist Allyx Formalejo and her husband, Jared, who has hemophilia.

Many boys with hemophilia play sports regularly, but frequent activity may raise the risk of sports-induced bleeding, a study ...

A single dose of experimental gene therapy GS001 reduced bleeding episodes in men with severe hemophilia A, a study showed.

A single infusion of gene therapy Beqvez led to sustained benefits over six years, results from a trial and extension study ...

Living with hemophilia B and von Willebrand disease means getting used to things people may consider unusual, says columnist.

Children with hemophilia who do not have access to cutting-edge preventive therapies often experience bleeding in the brain, a study shows.

Columnist Jennifer Lynne recently attended the CHES Foundation's One Drop consortium, a powerful space for those with rare bleeding disorders.

There's no easy "fix" for depression, and encouraging professional help when needed isn’t abandonment, writes columnist.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Not long after I started working at the Hemophilia Federation of ...

Columnist Joe MacDonald taught his sons how to manage their hemophilia and be independent. But letting go of control is challenging, he says.