Caris Gibson was ultimately diagnosed with Fowler’s syndrome, a rare condition that affects the urethra ...
A newborn in Minnesota has been a fighter since before she entered the world. Little Hazel has hydrocephalus, a condition that doesn’t allow her brain to drain fluid properly. When the baby was born, ...
Woman, 21, faces losing her bladder after dismissing rare condition as UTI - Caris Gibson was diagnosed with the rare urinary retention condition, Fowler’s Syndrome, in 2025 ...
A 13-year-old girl with a rare genetic condition will receive custom-made shoes next month in Detroit after a nonprofit ...
Elamipretide shows promise in treating Barth syndrome. Advocates hope it will win FDA approval. Walker Burger, who has Barth syndrome, injects the drug elamipretide at his home in Monroe on Friday, ...
Torie Bosch is the First Opinion editor at STAT. Celena Lozano’s son Benny, who turned 5 in November, loves trains, trucks — anything that goes. He also has a rare disease, PURA syndrome. Earlier this ...
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