IntraBio Inc. today announced the submission of a variation application to the European Medicines Agency (EMA) to expand the approved Marketing Authorization Application (MAA) for AQNEURSA® ...
Goldenrod Therapeutics, innovator in brain inflammation treatments for neurological conditions, completed initial close on $6 ...
SIOUX FALLS, S.D. (KELO) — Students from across Sioux Falls are getting together to raise money for a currently incurable disorder. Toes are tapping and harmonies echo, as students prepare for their ...
The National Ataxia Foundation (NAF) is an organization devoted to raising awareness, supporting families, and funding research for Ataxia, a rare and progressive neurological condition that impairs ...
SIOUX FALLS, S.D. (Dakota News Now) - An incredible student-led organization is dedicated to raising money for a rare disease ...
CHICAGO (WLS) -- The Friedrich's Ataxia Research Alliance (FARA) invites families, cyclists, and everyone else to their 5th Annual rideATAXIA Chicago event on July 24, 2016. The multi-route cycling ...
WOODBRIDGE, Conn.--(BUSINESS WIRE)--Cure Rare Disease (CRD) announced it has been awarded a $5.69 million grant from the California Institute for Regenerative Medicine (CIRM) to advance the ...
Regina McKenzie, CEO of Get It Done Solutions, shared her personal and heartfelt journey as a caregiver for her mother, diagnosed with Spinocerebellar Ataxia in 2012. During the segment, she ...
Irish Star on MSNOpinion
Galway woman says 'time is not on our side' in fight for rare disease treatment
Aoife Quinn, 23, was diagnosed with Friedreich's Ataxia at the age of 18.
RICHFIELD, Wis. (CBS 58) -- The 4th Annual National Ataxia Bowl for a Cure will take place Sunday, Sept. 28 at Pioneer Bowl in Richfield from 11 a.m. to 4 p.m. The fundraiser supports research, ...
RICHFIELD, Wis. (CBS 58) -- The 2nd annual National Ataxia Foundation Bowl for a Cure is scheduled to take place in Richfield aims to deliver a fun-filled bowling experience for participants of all ...
Friedreich’s ataxia is a genetic condition that affects the nervous system. It’s caused by a change in a gene responsible for regulating energy production within cells. This change means that the ...
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